In the age of personalized medicine, patient privacy and data collection are key issues and often in conflict. The Science & Justice Research Center at UC Santa Cruz will host a discussion of the issues in "Science and Justice in an Age of Big Data: A Conversation with Peter Yu and David Haussler," Wednesday, October 30, from 4-6 p.m. in Engineering 2, room 475 on the UCSC campus.
Haussler is director of UCSC's Center of Biomolecular Science and Engineering and leader of the new Global Alliance for Genomic and Clinical Data Sharing. Jenny Reardon, an associate professor of sociology and faculty affiliate in the Center for Biomolecular Science and Engineering, will moderate.
The program developed after Yu, incoming president of the American Society of Clinical Oncologists and director of Cancer Research at the Palo Alto Medical Foundation, contacted Reardon, who in March had written an op-ed in a San Francisco Chronicle special section on the subject of personalized medicine and patients being used as subjects in genetic research. She also is director of UCSC's Science and Justice Research Center.
The participants will discuss challenges to conceptions of property and consent as well as the production of biomedical knowledge created by recent initiatives to aggregate genomic and clinical data.
